Jayne. 21 , Great Britain.
knocked back by a chronic illness,fibromyalgia but not letting it take my life anymore. Finding passion through music, friends, art and laughter.
Frank Turner / Tea / skincare addict / Puppies / taking photo's
learning to fall back in love with life.
Did you know that invisible disabilities make up 96% of all disabilities? I certainly didn’t until I met someone my own age with rheumatoid arthritis. I’m glad to have met some absolutely amazing people who live with challenges that the eye cannot see because symptoms of fibromyalgia syndrome eventually became too big to ignore in my own body. I’m glad to know that I have so many others with invisible disabilities who understand me. I’m also glad to know that there are people who don’t understand, even though it can lead to hurt feelings and awkward moments, because I would never wish the pain I experience on anyone else. Regardless of whether or not you can empathize with my pain and my struggle, I deserve respect. I have the right to speak my story to people I trust and I also have the right to remain silent with people I don’t know. My disability is invisible, not imaginary.
"The bottom line is that everyone with a disability is different, with varying challenges and needs, as well as abilities and attributes. Thus, we all should learn to listen with our ears, instead of judging with our eyes.
Guess what I’m getting the family to watch ⛄️❄️
Anonymous asked: any hopeful words for someone who just had a bad relapse?
Oh, lovely… *hugs* I’m so sorry you’re dealing with this right now.
It can feel so heavy and defeating to be stuck in a relapse, and you may feel like you’ve erased all your progress, but that’s just not true! They don’t often tell you this, but relapse is a COMPLETELY NORMAL part of recovery. Every step “backwards” is a learning opportunity.
I don’t have a lot of specific advice, because I’m not sure what kind of relapse you’re dealing with; but in general my best advice is to be PATIENT and GENTLE with yourself. Accept where you are, decide where you want to be, and begin making small steps forward again.
You can do this. You’re okay. You are working hard and I am SO proud of you.
The fact that you asked me this question says a lot about you :)
I’d also recommend you check out my “coping skills” and “resources” tags for more specific advice, or you can come back (on or off anon) with more details and I’ll attempt to help you more.
Good luck, and please take care of yourself, my friend.
i’m not your anon stace, but i needed this today as well. thanks for always being amazing
Guess how many conversations my family who are round have made with me, the chronically ill and no social life girl.